2024 HLRCC Symposium

The HLRCC Foundation and the HLRCC Alliance are happy to present the 2024 HLRCC Symposium! To help support future programs like this, as well as other efforts in patient advocacy, awareness, education and research - please donate to the HLRCC Foundation using the link below https://hlrcc.org/donate-now Presentations include: Introduction of HLRCC Alliance - Presented by Dr. Roman-Ulrich Müller: 00:00-5:28 HLRCC Survey for Clinicians: 05:28-06:18 Introduction of Speakers: 06:19-08:40 HLRCC - a Multidisciplinary Challenge - Presented by Dr. Jan Degenhardt: 08:43-32:52 Question: Are there other tissues affected by FH Mutations: 32:52-34:18 HLRCC: The Patient Perspective - Presented by Laura Esfeller: 34:32-51:24 Dr. Neil Rajan Dermatologist discussing Cutaneous Leiomyomas: 51:25-58:19 Question: How to find Knowledgable Doctors: 59:19-1:01:24 Dr. Oti Uimari discussing Uterine Fibroids: 1:01:25-1:04:47 HLRCC - A Biologists Prespective - Presented by Christine Frezza Phd 1:05:08-1:29:14 Q&A of Dr. Frezza's Talk: 1:28:14-1:34:54 Management of HLRCC-Renal Cancer - Presented by Dr. Marston Linehan: 1:35:00-1:58:25 Questions: 1:58:26-2:09:39