Genetic Alliance

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248 videos

Genetic Alliance: Transforming Health through Genetics We promote an environment of openness centered on the health of individuals, families, and communities...

Latest Videos

iHope - Brianda's Story 2026

Exploring a new platform to identify drug targets

Webinar 3 Preparing for the Future of Public Health Newborn Screening

Webinar #2 Newborn Screening as a High-Quality Public Health Service for All

Webinar #1 Reflections on the Report from the Rare Disease Community

Celebrating our Founder Joan O. Weiss November 20, 2024

iHope program of Genetic Alliance

Disease InfoSearch is in need of funding

FedEx Grant Video

Recurrent Ovarian Cancer Treatment Guidance After Cancer Returns

Genetic Alliance in service to under-resourced communities

Cross Condition Burden of Disease Study

Registries and Studies Webinar

Community Driven Innovation™

Repurposing Drugs in a Novel Way EspeRare

Disease InfoSearch and GaugeRx

Disability Study

NETS

Genetic Alliance Research Symposium

A Registry-based Prospective Natural History Study Lessons Learned

Strategic Growth and Support for the Pancreatic Cancer Action Network's Research Agenda

Lessons From the Field Harnessing Pharmaceutical Interest In the Rare Disease Space

Engaging stakeholders in health research principles, methods, and tools for authentic engagement.

Lessons From the Field Understanding of Freeman-Burian syndrome

Lessons From the Field Genetic Testing for Stomach Cancer. Who, Where and Why You Should Be Tested

Lessons From the Field Colorectal Cancer Canada's Get Personal Program

Questions and Answers About Data Science

Lessons From the Field Utilizing Patient Registry to Further Connections to the Research Community

UMSDF Ambassadors Program Accelerate Advocacy and Awareness

Lessons From the Field Introduction to the National Down Syndrome Adoption Network