0:54Why patient voices matter in rare disease research Bojana MirosavljevicERDERA13 views·1 month ago
3:01Why European Reference Networks matter for People Living with Rare DiseasesERDERA18 views·1 month ago
1:34European Reference Networks Explained Why ERNs Matter for Rare DiseasesERDERA20 views·1 month ago
12:33Victoria Hedley explains the role of National Mirror Groups in the rare disease research ecosystemERDERA176 views·2 months ago
4:35How Clinical Research Networks Are Transforming Rare Disease Research CRNs Conference HighlightsERDERA126 views·2 months ago
42:36Together4RD x ERDERA Launch of the Toolkit for Public-Private Partnerships in Rare Disease ResearchERDERA145 views·9 months ago
13:10IMT Use Case how to conduct a multicentermultinational clinical trial in rare disease contextERDERA171 views·1 year ago
1:31Teaser EJP RD MOOC - Health Data Ethics & Regulatory Frameworks in Rare Disease ResearchERDERA420 views·1 year ago
1:00:13Key Solutions to Model Longitudinal Natural History Data Application in Ataxia DiseaseERDERA105 views·1 year ago
25:28IMT Use Case Using Zebrafish to Model Neurodevelopmental Disorders and CancerERDERA395 views·2 years ago
2:32IMT Use Case A Toolbox to Support Rare Diseases Clinical Researchers - RD Clinical Trials ToolboxERDERA136 views·2 years ago
